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Get Free AccessThe registry has been joined by 21 sarcoma reference centers across EU and UK, covering 10 countries. Patients' recruitment started in December 2023. The estimated completion date is December 2033 upon agreement on the achievement of all the registry objectives. The already established collaboration and participation of EHE patient's associations involved in the project will help in promoting the registry and fostering accrual.
Anna Maria Frezza, Hugh Leonard, Ninna Aggerholm‐Pedersen, Giuseppe Badalamenti, Paolo Baili, Giacomo Giulio Baldi, Sebastian Bauer, S. Bazzurri, Irene Benzonelli, Alexia Bertuzzi, Jean Yves Blay, Giuseppe Bianchi, S. Bonfarnuzzo, Christophe Bouvier, Kyetil Boye, Javier Martín‐Broto, Antonella Brunello, Domenico Andrea Campanacci, Paolo G. Casali, Carlo María Cicala, Elisa Crotti, Lorenzo D’Ambrosio, Angelo Paolo Dei Tos, Nils Dieckmann, Armelle Dufresne, Stephanie Elston, Virginia Ferraresi, Stefano Gabellini, Claudia Giani, Vincenzo Giannusa, Melissa Gil Sanjines, Teresa Grassani, Alessandro Gronchi, Paolo Lasalvia, S. Lindskog, Nadia Hindi, Matilde Ingrosso, A M Ivanescu, Robin L. Jones, Iwona Ługowska, Julia Ketzer, Anna Mariuk-Jarema, Alessandro Mazzocca, Laura Monteleone, Carlo Morosi, Andrea Napolitano, Francesca Nardozza, Elisabetta Neri, Maria Nilsson, Andri Papakonstantinou, Sandro Pasquali, Marta Sbaraglia, Federico Scolari, Joanna Szkandera, Claudia Valverde, Bruno Vincenzi, Salvatore Vizzaccaro, Federica Zuccheri, Silvia Stacchiotti, Annalisa Trama (2024). The observational EURACAN prospective clinical registry dedicated to epithelioid hemangioendothelioma: The protocol of an international and collaborative effort on an ultra-rare entity. , 19(8), DOI: https://doi.org/10.1371/journal.pone.0308387.
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Type
Article
Year
2024
Authors
60
Datasets
0
Total Files
0
Language
en
DOI
https://doi.org/10.1371/journal.pone.0308387
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