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  5. An agenda-setting paper on data sharing platforms: euCanSHare workshop

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Article
en
2021

An agenda-setting paper on data sharing platforms: euCanSHare workshop

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en
2021
Vol 1
Vol. 1
DOI: 10.12688/openreseurope.13860.1

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Paul M Ridker
Paul M Ridker

Harvard University

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Thijs Devriendt
Clemens Ammann
Folkert W. Asselbergs
+18 more

Abstract

Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.

How to cite this publication

Thijs Devriendt, Clemens Ammann, Folkert W. Asselbergs, Alexander Bernier, Rodrigo Costas, Matthias G. Friedrich, Josep Lluis Gelpí, Paul M Ridker, Kari Kuulasmaa, Karim Lekadir, Michaela Th. Mayrhofer, Václav Papež, Gerard Pasterkamp, Steffen E. Petersen, Carsten Oliver Schmidt, Jeanette Schulz‐Menger, Stefan Söderberg, Mahsa Shabani, Giovanni Veronesi, Darian Viezzer, Pascal Borry (2021). An agenda-setting paper on data sharing platforms: euCanSHare workshop. , 1, DOI: https://doi.org/10.12688/openreseurope.13860.1.

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Publication Details

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Article

Year

2021

Authors

21

Datasets

0

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0

Language

en

DOI

https://doi.org/10.12688/openreseurope.13860.1

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